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Connecting Care for Children with Medical Complexity Practice Network

HomeNetworks & HubsConnecting Care for Children with Medical Complex...

Network Overview

Children and youth with medical complexity (CMC) are a very small proportion of the child health population but a very high user of healthcare resources, in hospital, community and home.  This population is made vulnerable by the number of transition points in their care, the number of services and providers they interact with, and the movement from hospital to home, between healthcare settings, services and sectors (health, social services, education, etc).

Network Goals
True to our strategic priority of informing the development of innovative and integrated health systems this Network aims to: 
  1. Establish a national network of individuals and organizations for the purpose of sharing innovation in clinical care, system integration, research and education about children with medical complexity.
  2. Look for and advance solutions to shared problems related to the delivery of coordinated and integrated services to CMC and families.
  3. Conduct a scan of programs and service models available in the country
  4. Act as subject matter experts to:
    • Inform the writing of a policy paper on care planning and transitions for children with medical complexity
    • Prioritize research areas
    • Identify gaps in national data collection
    • Guide advocacy efforts of Children’s Healthcare Canada
View the Guideline for the Management of Medically Complex Children and Youth Through the Continuum of Care here.
 

Meetings: 

Beyond Survival: Recommendations for Transforming Support Systems for Children & Youth with  Medical Complexity and Their Families in British Columbia (February 7, 2025 - 12pm ET)

Brenda Lenahan, Director, BC Complex Kids, will be sharing results of a newly released report, "Beyond Survival; Recommendations for Transforming Support Systems for Children & Youth with Medical Complexity and Their Families in British Columbia". Join us to learn about this important family-led advocacy initiative in BC.

To join the CMC Network and attend this presentation, please fill out this short survey. You will then receive an email with the Zoom link for upcoming Network meetings.

BC Children’s Hospital’s New Centre for Kids with Health Complexity (May 3, 2024 - 12pm ET)

View the Recording

The Connecting Care for Children with Medical Complexities Practice Network is pleased to welcome Tessa Diaczun, MN, NP (Pediatrics) and Dr. Elizabeth Stanford to present: Planning for a new centre for children and youth with health complexity in BC and Yukon.

To join the CMC Network and attend this meeting, please fill out this short survey. You will then receive an email with the Zoom link for upcoming Network meetings.

The Extensive Needs Service: Partnering for Change (September 8, 2023)

Children’s Healthcare Canada’s Connecting Care for Children with Medical Complexity Practice Network is pleased to share that Kathryn Decker, MScOT Reg. (Ont)., MHSc, Director, Extensive Needs Service, Holland Bloorview Kids Rehabilitation Hospital will be speaking at our upcoming Network meeting on “The Extensive Needs Service: Partnering for Change”. This presentation will provide an overview of the program and tri-organization model (CHEO, Holland Bloorview Kids Rehabilitation Hospital, and McMaster Children’s Hospital), an overview of the service model delivery at the three sites and will discuss the next steps for regional coordination and development of communities of practice.

Date: Friday, September 8th at 12PM ET via ZOOM

The Connecting Care for Children with Medical Complexity Practice Network is just one of Children’s Healthcare Canada’s Value Networks and is open to all staff, employees, and families served at Children's Healthcare Canada member organizations. Our practice networks are designed to be multidisciplinary and inclusive of members across the continuum of care and are driven by Children’s Healthcare Canada priorities and guided by a project charter that will advance our strategic goals of advancing an integrated approach to delivering services for children and youth with medical complexity.

To join the CMC Network and attend this meeting, please fill out this short survey. You will then receive an email with the Zoom link for upcoming Network meetings.

The Complex Care for Kids Ontario Randomized Controlled Trial (May 5, 2023)

 

Presented by Dr. Eyal Cohen MD, M.Sc., FRCP(C) Program Head, Child Health Evaluative Sciences, Professor, Department of Paediatrics Professor and Full Graduate Faculty Member, Institute of Health Policy, Management & Evaluation

 


Network Co-Chairs

Susan Bisaillon
Susan Bisaillon

Susan Bisaillon is Chief Executive Officer of The Safehaven Project for Community Living. She joined the Safehaven team in 2016, bringing with her over three decades of frontline and leadership experience in the healthcare sector. A nurse by training, Susan has displayed a lifelong passion for delivering exceptional care during her time with the University Health Network, Trillium Health Partners, and Halton Healthcare Services. In addition, she has over a decade of experience as a surveyor with Accreditation Canada. Susan oversees daily operations and strategic planning across all of Safehaven’s locations.

Susan holds a Master of Science in Nursing from the University of Toronto, a Bachelor of Nursing from Memorial University of Newfoundland, certification in Critical Care Nursing from Ryerson University, and a Registered Nursing Diploma from Western Memorial Regional Hospital in Corner Brook, Newfoundland.

Genevieve Currie
Genevieve Currie

Genevieve Currie RN, PhD is a family partner researcher and nurse researcher focused on the families' experience in caring for children with neurodevelopmental disorders (NDDs) and family engagement in health care and research. Genevieve is an Associate Professor of Nursing at Mount Royal University in Calgary, Alberta. She works with colleagues focusing on disability research, care coordination and family engagement across Canada. Genevieve’s interest in engaging with families in research stemmed from her family experience of having two children with NDDs and dissatisfaction with the lack of involvement and perspectives of parents.


Join the Network

To join the CMC Network, please fill out this short survey. You will then receive an email with the Zoom link for upcoming Network meetings.

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