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Patients Included


The 2018 CAPHC Annual Conference will ensure that content in our program has relevance for patients, clients and their families, caregivers, and the public. The Patients Included charter provides conference organizers with a means of demonstrating that their events are committed to incorporating the experience of patients, who are experts in living with their condition, while ensuring they are neither excluded nor exploited.

Patients Included status is self-assessed and self-monitored. A conference that successfully meets all five of the charter’s clauses may accredit itself as a Patients Included event. The 2018 CAPHC Annual Conference, themed, Fresh Thinking, Brave Ideas, fulfills the five Patients Included charter clauses in the following ways:

1. Patients or caregivers with experience relevant to the conference’s central theme actively participate in the design and planning of the event, including the selection of themes, topics, and speakers.

Patient and caregiver contributions and expertise are integral to the planning and development of the CAPHC Annual Conference program. This year we have had Scott Wilson, a representative from the Canadian Family Advisory Committee, on our Conference planning committee. We have also had several patients and caregivers help plan and lead individual Conference sessions and are awaiting permission to include their names.


2. Patients or caregivers with experience of the issues addressed by the event participate in its delivery, and appear in its physical audience.

Patients and caregivers were invited to submit poster abstracts and may identify themselves in those roles. 

The 2018 CAPHC Annual Conference will also host the Canadian Family Advisory Network's annual workshop highlighting issues and stories experienced by patients and families across the country.


3. Travel and accommodation expenses for patients or carers participating in the advertised program are paid in full, in advance. Scholarships are provided by the conference organizers to allow patients or carers affected by the relevant issues to attend as delegates.

CAPHC will offer a Patient and Family Grant to pay for the travel, accommodations and registration for patients / family members in full so that they may participate in the Annual Conference. These award recipients will be selected based on their ability to support the planning of the event, contribute to the program, support other aspects of the event or attend and benefit from the event. Travel expenses will be paid in advance, and accommodation costs covered in full on site, with no costs being incurred by these patient and caregiver attendees.

The Application window for Patient and Family Grants for the 2018 CAPHC Conference is now closed. Successful candidates will be contacted privately by the CAPHC Office.

Families wishing to only attend the Canadian Family Advisory Network (CFAN) Saturday forum may do so at no cost.

There is a $50 charge for those who wish to attend the half day CFAN Workshop on Sunday morning.

CAPHC also offers a 50% discount on registration for patient and family representatives wanting to attend the full Annual Conference.


4. The disability requirements of participants are accommodated. All applicable sessions, breakouts, ancillary meetings, and other programme elements are open to patient delegates.

All 2018 CAPHC Annual Conference sessions and presentations are open to patients and caregivers.

On Sunday, October 21nd, the 17th Annual CFAN Workshop, will include panel sessions and discussions that will focus on applying all we’ve learned, sometimes the hard way, to the work that lies ahead.

The CAPHC Annual Conference has dedicated staff and volunteers who are experienced in accommodating patient requirements such as reserved seating, special diets, and other provisions as needed.

The 2018 CAPHC Annual Conference will be held at The Westin Edmonton, a modern, accessible facility, designed to meet the needs of all users. A complete list of Accessible services and amenities can be found here.


5. Access for virtual participants is facilitated, with free streaming video provided online wherever possible.

CAPHC will post all presentations and notes from speakers who have provide approval to share their work. Virtual attendees may access these presentations on the CAPHC website for free viewing and downloading.

The Twitter hashtag #CAPHC2018 or #CAPHC50 will be actively promoted before and during the Conference so that all participants, both actual and virtual, may participate in the conversations around the event.

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