Connected by Purpose. Driven by Passion.

2018 marked a very special year for our Association – not only did we celebrate our 50th Anniversary, we undertook the development of a new strategy which will modernize our organization and transform our focus.

Canada’s health systems are evolving. The context within which our members deliver care is different today than it was even five years ago. Knowledge is rapidly expanding, technology is revolutionizing how services are delivered and patients are engaged in new meaningful ways. It was time for us to change –an opportunity to present brave ideas and fresh thinking.

This transformative strategy leads us in courageous directions. Working in close collaboration with our members and others, we will inform the development of innovative and integrated health systems for children and youth. We will share evidence and accelerate implementation of high quality, child, youth and family centred care wherever it is delivered. We will unite strategic partners to foster excellence in children’s health. We will advocate to improve children’s health and health systems by brokering subject matter experts to inform public policy and legislation that impacts children’s health and health services.

Recognizing the bold new direction our Association was taking, and the relationships required to achieved success, the Board agreed it was time to refresh our brand, choosing an identity that would resonate with members, with child health partners including their patients and families, and elected officials. On October 23, 2018, the Canadian Association of Paediatric Health Centres officially transitioned to Children’s Healthcare Canada.

The feedback has been consistent. Members, child health partners, and other health system allies have spoken in favour of the directions we will pursue, have expressed interest in collaboration and have helped us share the news of our new identity.

We hope that you are as excited and energized by these directions as we are. Thank you for joining us on this journey! We look forward to sharing news of our progress over the weeks and months to come.

Emily Gruenwoldt
President & CEO
Children’s Healthcare Canada

Dr. Peter Fitzgerald
Chair, Board of Directors, 2016-2018
Children’s Healthcare Canada




2018 Highlights


From CAPHC to Children’s Healthcare Canada

In May 2018, the Board of Directors of the Canadian Association of Paediatric Health Centres met to develop a three year strategy to re-position and modernize the Association for the future. The meeting was the culmination of a months-long process and involved extensive consultation with key stakeholders including members, the Board, and other senior leaders from the broader Canadian child health community.

The consultation revealed tremendous alignment across all stakeholders. The priorities of the children’s healthcare community are squarely focused on creating stronger and more innovative health deliver systems, uniting partners across the continuum of care, and elevating the voice of children’s health to inform public policy and legislation.

Recognizing the bold new direction our Association was taking, and the relationships required to achieve success, the Board of Directors agreed it was time to refresh our brand, choosing an identity that would resonate immediately with members, with child health partners including patients and their families, and elected officials. On October 23, 2018, the Canadian Association of Paediatric Health Centres formally transitioned to Children’s Healthcare Canada.

Our Strategic Priorities


Advocating for Children and Youth in Canada

When it comes to advocating for children’s health and health systems, Children’s Healthcare Canada is uniquely positioned to broker subject matter expertise from across the continuum of care, to influence federal policy and legislation.

2018 marked a year of relationship-building, both with elected members of Parliament, and appointed Senators. Children’s Healthcare Canada was invited to participate in a number of consultations on issues related to children’s health including Cannabis, Mental Health, Child Health Research, Therapeutics, and National Pharmacare.

Notably, in the past year, Children’s Healthcare Canada has:

  • Convened a Senate-sponsored round table on the effects of Cannabis use in children and youth, with reference to Bill C-45, hosted by Senator Victor Oh

  • Presented at the Senate Standing Committee of Social Affairs, Science and Technology on the topic of integrated mental health services for youth

  • Co-hosted a Parliamentary Health Research Caucus luncheon on The Case for Made in Canada Paediatric Medicines and Clinical Trials

Strategically speaking, the Children’s Healthcare Canada Board of Directors, recognizing the significant responsibility and opportunity to advance our role advocating on behalf of our members, and of children, youth and their families, has struck an Advocacy Advisory Committee. This Committee, led by Alex Munter (CHEO) will report directly to the Board and will inform the Association’s approach to influence federal policy and legislation.

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Building Communities


Two new Communities of Practice were launched in 2018!

Child and Youth Mental Health
Transitions across the Care Continuum

These communities have been getting to know one another and have made connections, shared program information through monthly presentations and begun to think about opportunities to collaborate to improve practices.

New members are always welcome

What do our communities of practice do?

  • Identify and share leading practices of integration/coordination of care

  • Look for collaboration points within the child and youth health service community and with external stakeholders and partners

  • Identify data sources and gaps

Although our original four CoPs wrapped up in 2018, the work didn’t stop!

  • A national webinar took place to launch the Guideline for the Management of Medically Complex Children and Youth through the Continuum of Care

  • Webinars to launch the Acute Presenting Pain Toolkit and the Chronic Pain Toolkit were presented to a large national audience

    • The Pain Toolkits were presented at the Canadian Pain Society’s (CPS) 39th Annual Scientific Meeting poster fair in Montreal

  • The Guideline for Transition From Paediatric to Adult Health Care for Youth with Special Health Care Needs is being used as a framework for research projects across the country.

    • It has been cited seven times in 2018 for journal articles, Practice Points, Consensus Guidelines and Theses.


Health Standards Organization (HSO) and Children’s Healthcare Canada have partnered to develop a child and youth mental health standard.  A national Children’s Healthcare Canada work group is meeting to define the scope with the guidance of the HSO Technical Committee. This work is ongoing and aims to be complete in 2019.

This partnership has also produced an application to the Health Care Policy Contribution Program for funding to test child and youth mental health standards in an integrated services model.  


Fresh Thinking - Brave Ideas
The 2018 CAPHC Annual Conference

This year we headed west to Edmonton, Alberta for the 2018 CAPHC Annual Conference. Our co-hosts, The Stollery Children’s Hospital and Glenrose Rehabilitation Hospital, worked tirelessly to support the CAPHC Staff with on-site logistical help, hospital tour organization, volunteer recruitment, speaker recommendation, and so much more. We could not be more grateful for our Edmonton colleagues.

Our Master of Ceremonies, Jack Hourigan, welcomed invited guests including Dr. Verna Yiu (CEO of Alberta Health Services), Lisa DeLong (mother, and RN), Dr. James Makokis (family physician and Indigenous health advocate), and Dr. Peter Laussen (Chief of Critical Care Medicine at SickKids).

In addition to the main stage, we expanded our content offerings over two blocks of concurrent sessions and introduced a new session called What Changed My Practice. This session brought 6 fast paced presentations to the stage with tangible take-home advice.

Delegates were able to access further information and resources through Social Media, the Conference Mobile App, Slido, and the attended poster fair.

The 2018 Conference was proud to be recognized for a second year as a Patients Included event. Through the support of our 2018 Patient and Family Grant Sponsors, five Patient and/or Family Members were funded to bring their voices and experiences to the Conference. The inclusion of these five individuals, along with other patients and families in attendance, allowed us to dive deeper into this year’s conference theme. We look forward to continuing this grant process in 2019.

2018 marked the 50th Anniversary of the Association which was celebrated at a 50th Anniversary Gala at The Art Gallery of Alberta. The evening was filled with great food, dancing, comedy, and awards and truly celebrated 50 years of commitment, hard work, and passion from our members, staff, and community.

Most notably, on Tuesday, October 23rd, Dr. Maureen O’Donnell (incoming Chair of the Board of Directors) and Emily Gruenwoldt (President & CEO) shared a transformative new strategy for the Association, and subsquently announced that in lock step with the new strategy, CAPHC would be modernizing it’s brand and visual identity, transitioning to Children’s Healthcare Canada.

The 2018 Conference was an enormous success and would not be possible without our co-hosts, planning committees, Board of Directors, and conference sponsors. We look forward to convening in Ottawa in 2019 for the first annual Children’s Healthcare Canada Conference!


Knowledge Mobilization

Our knowledge mobilization (KM) activities continue to be our most high profile activities. During a survey of our members and stakeholders, almost 90% of respondents indicate that they are familiar with at least one of our KM offerings (webinars, blog and Knowledge Exchange Network).

Our webinar series is the most popular of our KM offerings. We are experiencing strong growth in numbers of viewers and attendees, but we are now analyzing our data to see if we can determine, not just the popularity of our activities, but also the relevance and utility.

Our attendees have the opportunity to rate their overall satisfaction each webinar on a scale of 1 to 5. The average rating is 4.4 out of 5, with 91% of our attendees giving a 4 or a 5 out of 5.

When asked the question, “how likely are you to use the information or methods presented in this webinar”, 74% of attendees indicated they are ‘likely or very likely’ (4 or 5 out of 5) to apply the information provided to them.

Introducing Spark

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As part of our transformation to Children's Healthcare Canada, we are looking to leverage our strengths and build on our successes. Our knowledge mobilization activities will be consolidated into our Spark program. Spark is focused on sharing information and expertise, and sparking conversation, ideas and action. Our blog will transition to Spark Conversations, and our live webinar program is now branded Spark Live. Content will largely reflect our strategic priorities and populations defined by the Board, as well as reflect emerging issues identified by our membership. Our goal over the next few years is to continue to grow our audience, as well as to expand and diversify our content offerings to meet the needs of a more broad and diverse group of stakeholders from across the child and youth healthcare community.


Paediatric Rehabilitation Reporting System (PRRS)

The Paediatric Rehabilitation Reporting System (PRRS) is a program designed to collect and share data from paediatric rehabilitation centres across Canada. The objective of PRRS is to assist with decision support and planning of services to improve care.

Between 2017 and 2018, data collection doubled in terms of the volume of records collected by PRRS sites. A significant achievement!

Plans are underway to expand the scope of data collected, and grow the number of participating sites in 2019.

“Parts of this material are based on data and information compiled and provided by CIHI. However, the analyses, conclusions, opinions and statements expressed herein are those of the author and not necessarily those of CIHI."